Now, hold on. I didn't say I'm not appreciative because I am. I didn't say I don't help out, because I do. I cook dinner, and I do clean. And I'm happy to when it's not being announced to me WHEN I'm going to do things. ("You need to get these out of here.") I have my bad days with this illness, and if I feel bad, I'll rest. If I feel like writing, I will. I just don't want someone else's AGENDA imposed on me for WHEN I'm expected to do it. At home, I was a binge and purge housekeeper. That's how I work.
I don't want a damned audience for my cleaning either, because I'm usually critiqued for the way I wash the dishes. If you get home and they're done, well you're welcome. But don't expect me to let dishes sit for an hour or two in disgusting, tepid, well water. I'll make a big sinkful of hot, then rinse them in cold. Don't like it? Wash your own damned dishes.
Sorry, sore subject.
I hear ya but I don't think Use Her Name meant it that way. MS is one of those diseases where you might not look as sick as you feel. I have a severe chronic pain condition and house chores are a sore subject for me too. The binge purge is what you have to do; do it when you have the energy. When you don't, you look like you're sitting on your lazy butt but in reality you CAN'T do it. Other people tend to unconsciously assume you don't feel any worse than they do. But with "invisible" conditions that is simply untrue. Even if you have visible items such as a walker or wheelchair, people do not
really get it.
Over time I've had to learn how to communicate my physical disabilities to family members. MS causes FATIGUE. You are physically unable to push your muscles beyond a certain point when the nerves serving them flair. Your doctor (when you get to see him) might be able to formulate some way to
articulate and
quantify your abilities.
We with chronic, systemic diseases seem to underestimate the effects on our activities, and allow other people to overestimate what we can comfortably do. This leads to the tension of them expecting more from us and us feeling defensive about not doing it. It is very important that people with chronic physical disease which is not apparent to others, be clear in their own mind, without self-recrimination, when to draw the line. Then, hopefully you can communicate that line without ambiguity. I think it is imperative you get your husband on the same page first, then let him be your advocate. People with systemic disabling disease do best when able to pace their activity and manage their own timeframes for doing things.
Think about your limitations in detail, by yourself if you can't see the doctor, and how they impact you. "MS brain", shoulder and arm fatigue, trouble standing for long periods, simple lack of energy (be honest - remaining a couch potato itself causes lack of energy, but with MS, you have a big and real disease factor there). Think about what you CAN do to contribute, and what you need from the family to help you do it. It sounds like things are disorganized with unclear expectations. "You need to get these out of here," cannot fly with you. But they say such things out of their frustration and uncertainty about when "these" are going to get out of their way.
My response to something like that will be: "Yes, I see they're in the way.
My thigh muscles are too weak right now to handle it, but if you help me we can both get them out right now. Otherwise, I might be able to do it tomorrow morning after the night's rest." No emotion except a pleasant smile. Agree with their problem. Agree to help them with their problem.
Draw your exact physical disability line in the sand. Factual and straightforward, not apologetically, not confrontationally, just a fact - the thigh muscle just won't do it, dangum thing just won't cooperate.
As I said before, you really need to get away from them, but if you cannot financially right now, I would try to sort out, with no emotion - whatever these lines in the sand are for you. Talk it over with your husband, again, with no emotion. Stick to the discussion of your boundaries; do not generalize about how they're driving you nuts. Tell him that you agree with him that it is right not to cause friction with them, and that you need his help to find ways to REDUCE friction. One of those ways is going to be for him to back you up when you set your physical limitation.
Secondly, there is always friction when two people try to do the same chore. Soaking dishes vs hot wash and rinse. Sometimes it is best to completely take over a chore rather than try to work it around somebody else's way. Personally, if it is my kitchen,
I want to do the dishes; I do not want or appreciate anybody else in there at all, because they always do it wrong. That is probably the sort of place your mother in law is coming from with the hovering over you critiquing how you're doing it. She wants you to do the work but she wants you to do it
her way. I have learned to LEAVE when someone else is in my kitchen "helping" and doing it wrong. If I want the help, then I need to get over the fact they aren't doing it right. I can't have it both ways. (And I'm wise enough to see that there really is no "right" or "wrong" way to do dishes; as long as they get clean.) On the other side, when I'm the one doing the dishes and the kitchen-owner is hovering (my mother), telling me I'm doing it all wrong, I have learned to say, "Mom, please go sit in the living room and watch your show, really, I'm fine here, I will get it done faster if you go enjoy yourself." Don't know if that will work for you but worth a shot. Frame it as concern for HER relaxation rather than "get the hell off my back," ha ha ha.
The other issue is your need for alone time, away from their radio and so forth. This is a general privacy and peace of the home issue that might not be possible in the spaces you occupy with them. The best you might be able to do is to make your husband understand that you need SOME type of break SOME time, whether he drops you off at the library for a day, or lets you drop him off at work so you can have the car, or just a date out just the two of you. It might not be possible to gain much long writing time until you get into a better living situation. But it might benefit your husband to be reminded that the more your mood can be improved, the more pleasant HIS life will be.
The head thing (whether it is MS brain, or fatigue or whatever) is a real and major impediment and it is very poorly understood, even by doctors and patients, much less by general people. And it is NOT "mental", it is real, organic dysfunction caused by demyelination or inflammation in the case of autoimmune illnesses. I think that is behind a whole lot of the need for peace and quiet in both our cases. People are generally clueless about these real difficulties we chronically ill with autoimmune disease must endure. The worst is when we feel accused of "using" our disease to "get out of" doing stuff.