Writing About Autism Spectrum

sissybaby

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I've been floating around some ideas about writing something in the MG range from the viewpoint of a kid on the PDD spectrum. I wonder if it's been overdone, or if there's an interest, or if I could even pull it off. I've only finished a portion of Mockingbird, but haven't discovered any others to get a feel for what's available.

The way the ideas are coming, it would be more on the lines of a journal type thing, but hopefully I can pin down a specific plot to it all.

Does anyone have any recommendations or ideas about this? My son has just mentioned that he'd like to read a book that was somewhat about him, but not really about him, per se. His life is pretty boring, so I'd need a lot of ideas to flesh it out.

Thanks for any comments.
 

Morrell

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Sissy, your son might like Freaks, Geeks, and Asperger Syndrome. It was written by a bright 13-year-old with Aspergers. It's not a novel, but it's interesting and enlightening, as well as fun to read.

Others recommendations--these aren't all MG, and you've probably read them already, but here's what came to mind:

Rules (your son might not like it b/c the MC is the older sister of a boy with autism)

House Rules by Jodi Picoult (not a kids' book, and kinda terrifying, speaking as a parent, but definitely exciting...)

The Curious Incident of the Dog in the Nighttime is narrated by a teen with autism. It's an adult or YA, depending on who's doing the classifying.

A Wizard Alone by Diane Duane -- I haven't read it, just heard about it, but here's the blurb: While Nita grieves over her mother's death, Kit tackles a challenge as dangerous as it is strange: Rescue a young wizard who has vanished on his first assignment. This new wizard is unlike any other--he's autistic and he's a magical prodigy. His power is enormous. Now Kit and his dog, Ponch, must track down the missing boy before the Lone Power finds him.

The sister in Al Capone Does My Shirts has autism, though it's not labeled.

That's a start, but it's not much. I think you should take Toni Morrison's advice: if the book you want to read hasn't been written yet, then you must write it.
 

MsJudy

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I think Emma Jean Lazarus is on the spectrum, but it's never really spelled out.

My favorite (though again, YA not MG) is Marcello in the Real World.

Definitely room in the MG market for more spectrum books--especially because most of the ones out there so far deal with more severe autism, and are told from the sibling's POV. Not many good ones that really get into the POV of a quirky kid.
 

Kitty Pryde

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I think Anything But Typical is the best I've read from the perspective of a kid on the autism spectrum. The kid does okay at school but struggles in social situations. He is able to blend in on a kid's online writing forum, and makes a friend! But he is worried about meeting her and being "outed". He's a cool and unique kid, I think someone your kid might feel good identifying with.

Oh! Another good one is The London Eye Mystery by Siobhan Dowd--he is a cool nerdy mystery solver!

Might be beyond his reading ability, but The Secret Diary of Adrian Mole, Aged 13 3/4 is a sort of YA novel before the YA category existed, about a kid with Asperger's Syndrome, before Asperger's Syndrome existed. It has sequels that follow him all the way into adulthood. They are fun to read because he is a nice combination of really smart and totally clueless.

Most novels about children with autism seem to be written from the viewpoint that children with autism are mysterious inhuman enigmas that cannot be understood, overlayed with a variety of interesting symptoms, and seem to be written by someone who once met an autistic child and then read some wikipedia articles. A realistic three-dimensional character is hard to find! The sister in Al Capone Does My Shirts is the most realistic one I have found.

A couple more for the sake of thoroughness, that I didn't dig that much:

The Very Ordered Existence of Merilee Marvelous: the kid felt really unrealistic.
The Danger Box: this kid has an autism-like condition that seemed unrealistic, as well as a major visual impairment, and he was also a tragic orphan.
 

sissybaby

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Thanks so much, ladies, for all the great suggestions.

I will check out all the MG books mentioned, but not the YA - I don't think he'd read them, although I could read them to him and he would probably comprehend most of it.

I think my biggest problem would be in trying to realistically address his inability to relate to kids his own age without making him angry. The kids like him, but he often feels they don't, but if I ask him about it he will insist he has lots of friends. It's a struggle and something I need to be sensitive about.

I don't know. Maybe I should just start writing some of what's in my head and put it aside, and go back to it later to see if it's anything I can develop.

Thanks again for the help and all the great suggestions.
 

MsJudy

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Ah, yes, the difference in how the kid perceives situations versus how other people do. I got some first-hand experience of that with a student I had last year... who over the summer spent time with Grandma. Grandma doesn't believe her darling might have Asperger's or anything else. He's perfect just the way he is.

Which is a good thing, up to a point. The problem is, she doesn't get that his perceptions may be a little off-center. So by the end of the summer, they had decided that 1) first grade was the worst year of his life 2) everybody bullied him and 3) I didn't do a thing to help him because I "disapproved" of him.

The good news is that the parents didn't completely buy into Grandma's delusions and contacted County Mental Health for help. So now he's in counseling with a pretty good therapist (from what I can tell) who is helping him learn to 1) interpret more accurately what's going on in social situations and 2) speak up at the time there's a problem so adults can help him figure out what's happening BEFORE it becomes a huge, painful problem.

This all makes me think it would be quite a challenge to show the POV of such an unreliable narrator. Being able to show MC's feelings and the way other people would see the same situation without making MC look unsympathetic... Wanting him to be clueless but in a likeable way, and keeping it clear that other people weren't really trying to make him angry.
 

suki

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A MG novel with a main character on the spectrum is The Reinvention of Edison Thomas, by Jacqueline Houtman. It does a good job of staying in the main character's point of view, and looking at bullying and friendship and social interactions from the perspective of a kid for whom interpretting those situations might be a challenge.

~suki
 

sissybaby

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Thank you Suki. For some reason that book sounds very familiar to me. Perhaps I read it and forgot all about it, but I will definitely check it out again.



Thanks, Judy. I think you're right about the perception thing - I don't want the character coming off as a jerk.

But, I've always been very honest with my own son, and I know that even though he often perceives the other kids as bullies, I've been active often enough in the classroom that I can sort of help him see that they aren't always as he perceives them. Then, he says that it's only because I'm there, and we have to go through it again.

I probably can't pull this off, but I wanted to give it a try. Even if it's only as an exercise in giving us opportunities to examine feelings and perceptions. I think it might help him.

And I definitely want to read some of those books with him. Just this morning he asked again what autism is, and there's just so much that I can't explain, so I hope reading and finding people (characters) he can find some identity with might be helpful. But again, it may not. His thinking processes baffle me.

Then he also is asking lots and lots of questions about his birth family that I can't answer. The ones I can break my heart, so it's all good when i can find something positive to help him deal.
 
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dolores haze

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Might be beyond his reading ability, but The Secret Diary of Adrian Mole, Aged 13 3/4 is a sort of YA novel before the YA category existed, about a kid with Asperger's Syndrome, before Asperger's Syndrome existed. It has sequels that follow him all the way into adulthood. They are fun to read because he is a nice combination of really smart and totally clueless.

I totally loved those books. Funny - I've never made the connection with Adrian and AS until you mentioned it, but I think you're right.

Maybe, Sissy, a joint diary for you and your son would allow you both to explore his/your/others perceptions. And I also recommend the Adrian Mole books. They're very funny, and maybe you and your son could use them to inject humor into the difficulties of his every day life. A well-developed sense of humor can get you through almost anything, I've found.
 

kuwisdelu

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Just this morning he asked again what autism is, and there's just so much that I can't explain, so I hope reading and finding people (characters) he can find some identity with might be helpful. But again, it may not. His thinking processes baffle me.

I would just tell him it's a different way of thinking, a different way of seeing and relating to the world. Sometimes that means having trouble understanding things that everyone else can understand easily. Sometimes it means being able tosee and understand things that other people can't.
 

Debbie V

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My daughter is also PDD. She has very few friends, but she is just beginning (in sixth grade) to understand that. I discussed it with her before middle school started. Girls can be nasty. Some things that seem like being friends aren't. We had an object lesson before school started. The kids in our district can go open their lockers and practice their schedules. Lydia waved hello to a few girls who waved back politely. They however greeted her friend Meghan warmly - Meghan has downs. They treated her like a much younger sibling.

I asked Lyd if she thought these girls would invite Meghan to parties. Nope. They don't know what to make of Lydia, so they're polite and that's it. She's quirky and very literal with stimmy behaviors. They know exactly what to make of Meghan and treat her accordingly. Thankfully, Meghan doesn't know.

Now Lydia knows that these friendly girls aren't necessarily being her friends. If I were to write about her, this is how I'd start. She doesn't have to be aware of the diferences for the reader to get it.

Sissybaby, if you decide to give it a try, I'd be happy to critique. Something that doesn't make a kid too different would be good for all to read. Of course, that lesson isn't a good enough reason for them to read it.
 

Morrell

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Thanks for sharing your insights, Debbie. Navigating the middle school social scene is hard even for kids who are typically developing. For kids on the spectrum it's a hundred times worse. I know what you mean about the kiddos treating the girl with DS like a much younger child--I see this a lot with my students. On the one hand, it's good that they're taking an interest and trying to interact. They probably mean well. But I often see kids treating my students like class mascots, or quizzing them all the time: "What's my name? What's his name? What color is this?" etc. Or, worse, telling them to do inappropriate things or repeat inappropriate words (which the child does, because he wants so much to please his "friends.") And, like you say, some disabilities are more attractive than others. The cute, low-functioning kid will get more positive peer interaction than the unpredictable ED kid or the bright-but-quirky AU kid with odd behaviors. Some gen ed teachers have less of a clue than the kids do. Write the book, Sissy--there is a need. *gets down from soapbox*
 

sissybaby

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Thanks so much for all the comments, insights and encouragement! My brain is bombarding me with ideas and instances, but a plot is still lacking, unfortunately.

Interesting comment about the quizzing and the encouragement for unacceptable behaviors, Ruth.

Just the other day he was out with his case manager. He came home very upset and angry. He is just taking a huge interest in baseball, and they were at the park tossing the ball back and forth when two girls from school showed up. In his efforts to garner some female attention, my son got hit in the head with the ball, which, of course, became a huge source of embarrassment. He was sure the girls would laugh at him. So he started shouting "son of a B#st#rd" at his case manager.

When his CM left (he's a young kid that is so mild-mannered and takes everything in stride and I absolutely adore him), I went in to discuss language with my son. He does not hear (many) bad words at home, and I was shocked at the usage. I asked him what he had said, and he bluntly told me. I told him that was an unacceptable word for him to use, and he replied that he did it to avoid using the really bad word.

Of course I had to know what the bad word was. He said, "You know, mom, the son of a mmm-mmm word. The one that rhymes with witch." I explained that the word he used was just as bad and he became very upset and said he didn't know that, and why hadn't anyone told him that. Upon further discussion, I discovered that the girls at school had told him that the word he used was an okay word, but that the witch word isn't.

If I hadn't seen the genuine hurt and confusion on his face, I never would have believed his story. I don't know how we've kept him so innocent in some ways, but I sooo don't appreciate the nasty little girls that are teaching him about pain and betrayal.
 
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Debbie V

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Ruth,
Maybe if you write the ideas that come, some plot will follow to tie them together. Or perhaps you'll end up with a series of short stories.

Sissybaby,
That tale of woe makes me cry. My SEPTA has a parent support group and this sort of thing is why. Of course, we also cover clueless teachers.
 

Cyia

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Focus more on the spectrum and less on the autism. When people do the opposite, you end up with the stereo-typical non-communicative, touch adverse, non-emotive child most people seem to think is the only viable form of autism out there.
 

AllieKat

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As someone with mild Asperger's, I'm interested in to know there are so many books about kids with Asperger's. For most of my life I thought I was "just weird." I tended to enjoy reading about characters who were a little odd or outside the normal in some way. I think it would be great to see people on the autism spectrum portrayed in more positive or well-rounded ways.

...But when I read "Curious Incident of the Dog in the Nighttime," I hated it. Go figure.
 

sissybaby

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Thanks for the additional comments. I'm still fighting this.

I've been reading some of the suggested books. Loved Al Capone Does My Shirts and Rules. I'm working on The London Eye Mystery now, but so many of the British terms are unfamiliar to me so it's going a bit slow. I'm not crazy about his habit of shaking his hand out. I don't know why that bothers me so much, but maybe simply because it seems so stressed.

Most of the recommendations aren't available here, so I'm waiting for loaners to come in from other sources.

A plot is beginning to emerge in my thoughts, but it involves our town, and a lot of historical aspects that are unique to our town, so I'm not sure if that is going to work. It will be neat if it could, but anyone from around here would absolutely know it's about our town. Does that work?
 

Morrell

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A plot is beginning to emerge in my thoughts, but it involves our town, and a lot of historical aspects that are unique to our town, so I'm not sure if that is going to work. It will be neat if it could, but anyone from around here would absolutely know it's about our town.

Ooh! Will people be scandalized, like in The Help?
 

Debbie V

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A plot is beginning to emerge in my thoughts, but it involves our town, and a lot of historical aspects that are unique to our town, so I'm not sure if that is going to work. It will be neat if it could, but anyone from around here would absolutely know it's about our town. Does that work?

Specifics are a good thing. It will seem more real even to readers who aren't local. It also makes it a good bet for a local independent press, often easier to get than the big ones. I say go for it and see what happens. After all, it's not written in stone.
 

sissybaby

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Thanks for encouragement, Debbie. You posted at 1:11, which is my favorite time of day.

I've just about convinced myself to try this for NaNo. I've got much more research to do in the next couple of weeks.

And if I don't finish it, I don't really mind. I've failed at NaNo before, and survived the shame.
 

Debbie V

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Keep us posted on how it goes. I never try Nano. Doesn't fit my style. I'd never get it done, but I'd stress myself about it while trying. I don't need any more stress than I've got. Good luck.
 

MsJudy

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*sigh*

Looks like this is my year to gather more interesting stories...

Thought I'd share two.

Kid #1: He punched me in the stomach!
Kid on the spectrum: Well, he said he wasn't going to be my friend!
Me: If you keep kicking him and punching him, I don't think he's ever going to want to be your friend.
Kid on the spectrum: That's not fair!

*sigh*

Happier story:
Mainstreamed boy with autism is beginning to develop a do-what-everyone-else-is-doing strategy. They're on the rug, I should go to the rug. They're going to lunch, I should follow them to the cafeteria. It's working very well for him, and he's becoming more and more engaged in the class routines.

So, today, as we went out to recess, a bunch of my darlings ran up to give me hugs. He followed along behind, like he does. Then he got to me... oops. Kids with autism don't much like hugs... Awkward moment... So I just touched his shoulder and told him he was doing a good job. That was enough, and he went off to play.
 

jaksen

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To the op:

Why don't you and your son write a book together? Whatever he wants, fantasy, action-adventure, SF? He supplies the scenes, ideas; you write them out.

I have an adult son with autism who is nonverbal and wears diapers. He is also mentally retarded. I would love to write a book with him, but his intelligence is about 18 months to 2 years. He 'eats' board books.

Take what you have and revere it - and write about it - in whatever way or method seems most appropriate for you and your son. As limited as my own son is, he is a treasure, as I am sure yours is to you.