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- Dec 18, 2011
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- South Louisiana
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- www.thriftymommaramblings.com
Hi everyone. I posted about this on another forum and was directed to this forum for more help. I started a blog, but I feel like it would be easier to write as a book instead of smaller posts. Here is a brief overview of the story. I will highlight the part I want to retell, but I am worried about legal issues. That part is in blue.
My second son was diagnosed with Spinal Muscular Atrophy at 1 month old, and his prognosis was grim. It was very unlikely he would live past 2 years old, and probably die within the first year. There was no hope. I had to basically watch him wither away, and then make a life-changing decision to let him go or to prolong it for a few more months. We decided to let him go. In the midst of this, I had a panic attack on the way home from the hospital. That set the stage for the next several years of battling anxiety. I let myself go and gained over 100 pounds. I became very reclusive which is unlike me. Then my oldest son was starting to have more behavior problems in school as he got older. There was several misdiagnoses and he was exhibiting lots of anxiety.
Here is where I'm not sure if I should write it in a book or how much. The principal lied to me, manipulated me, and I had to really fight for my son. I still have to fight but it has gotten better. I guess I have to gloss over certain things as I don't want a lawsuit on my hands. My son did run off campus and in front of my car because of the extreme anxiety he has. I never hit him either, but I'm just not sure how to word certain events. I will assume I have to be very vague, but I'm just wondering how much is too much. There are certain events that I am omitting altogether to protect my son's privacy when he is older. He may not appreciate it when he's an adult. I'm also wondering if I should just leave out his story, and just write about losing my second born son. I don't know at this point.
I had to overcome my anxiety if I was going to help my son. I did get on Zoloft which did help me to become my old self again. I lost 100 pounds, and am keeping it off. I even went back to college and finished my first semester after 16 years out. I graduate in May. I put my son on Zoloft and he is doing so much better in school. He has been in school all year for the first time in 2 years and is in all his regular education classes. He was homebound off and on the last 2 years. He was misdiagnosed ADHD and then bipolar. He has Pervasive Developmental Delay (form of Autism) and Sensory Processing Disorder along with the anxiety. He gets different therapies, but I have to advocate for him to ensure he receives his accomodations in his IEP. The story does have a happier ending, but it's been a very long road. We never had anymore children since we didn't want to risk having another baby with SMA. It's a genetic disorder.
Thanks for any input or feedback. I'm pretty sure there is a market for this type of book, and so far I've gotten a good response of the little I have posted on the blog. The more I share what I've been through, the more empowered I feel by helping other families. Sorry for the rambling.
My second son was diagnosed with Spinal Muscular Atrophy at 1 month old, and his prognosis was grim. It was very unlikely he would live past 2 years old, and probably die within the first year. There was no hope. I had to basically watch him wither away, and then make a life-changing decision to let him go or to prolong it for a few more months. We decided to let him go. In the midst of this, I had a panic attack on the way home from the hospital. That set the stage for the next several years of battling anxiety. I let myself go and gained over 100 pounds. I became very reclusive which is unlike me. Then my oldest son was starting to have more behavior problems in school as he got older. There was several misdiagnoses and he was exhibiting lots of anxiety.
Here is where I'm not sure if I should write it in a book or how much. The principal lied to me, manipulated me, and I had to really fight for my son. I still have to fight but it has gotten better. I guess I have to gloss over certain things as I don't want a lawsuit on my hands. My son did run off campus and in front of my car because of the extreme anxiety he has. I never hit him either, but I'm just not sure how to word certain events. I will assume I have to be very vague, but I'm just wondering how much is too much. There are certain events that I am omitting altogether to protect my son's privacy when he is older. He may not appreciate it when he's an adult. I'm also wondering if I should just leave out his story, and just write about losing my second born son. I don't know at this point.
I had to overcome my anxiety if I was going to help my son. I did get on Zoloft which did help me to become my old self again. I lost 100 pounds, and am keeping it off. I even went back to college and finished my first semester after 16 years out. I graduate in May. I put my son on Zoloft and he is doing so much better in school. He has been in school all year for the first time in 2 years and is in all his regular education classes. He was homebound off and on the last 2 years. He was misdiagnosed ADHD and then bipolar. He has Pervasive Developmental Delay (form of Autism) and Sensory Processing Disorder along with the anxiety. He gets different therapies, but I have to advocate for him to ensure he receives his accomodations in his IEP. The story does have a happier ending, but it's been a very long road. We never had anymore children since we didn't want to risk having another baby with SMA. It's a genetic disorder.
Thanks for any input or feedback. I'm pretty sure there is a market for this type of book, and so far I've gotten a good response of the little I have posted on the blog. The more I share what I've been through, the more empowered I feel by helping other families. Sorry for the rambling.