I'm not deaf - folk don't speak clearly

Bufty

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I'm really not sure where to post this but I felt it might help others if I posted it somewhere.

Full hearing loss must be extremely hard to live with and I am so grateful I have not lost my hearing to that extent.

My relatives and friends mentioned to me for years that I'm 'deaf' but I ignored them, saying I was not deaf and they were mumbling or not speaking clearly enough. For the last few years I've used sub-titles on TV because I was convinced the sound tracks were not good on films in particular and that folk did not speak clearly enough on TV shows.

If I was in the back of a car or a taxi conversation with anyone in the front seat was a no-no. Passengers in my own car sounded muffled and I put it down to wind and engine noise. I was most certainly not deaf.

Anyway, to cut along story short, I finally decided to get my hearing checked and on 4th September duly reported to the local National Heath Service Auditory Centre.

My tests showed I had what the centre considered to be moderate and normal age loss of the higher and lower frequencies that meant, for example, I would be expected to (and did) have difficulty hearing children's voices, women's consonant pronunciation, high notes on a violin, conversations with softspoken folk, conversations in a crowd scenario etc..

It normally takes ten to twelve weeks for hearing aids to be received but I had a phone call last week to say there had been a cancellation and could I attend the following day - Tuesday 30th September.

My hearing loss being what is termed moderate, meant I did not require a moulded aid, but two of those tiny battery powered units that fit round and behind the ear. The minute funnel insertion is around 4mm into the ear and -via an almost invisible tube - the sound is channeled to the digital portion behind the ear, that contains the works, the battery and the microphone. It completely blends into my white hair.

It took around twenty minutes for an extremely confident Indian lady to explain the use of the aids to me and to computer program the aids to fit my frequency charts. All fascinating and totally painless and comfortable.

When she told me she was switching the aids on I was astonished at what I heard.

Her typewriter was not silent as I thought. I heard every keystroke. Her chair squeaked and I heard the wheels on her chair as she turned. She opened the window and I heard wind and traffic.

Armed with the aids and free batteries and instructions, I left and headed back for my car. My footsteps all sounded, and gravel crunched. I heard wind blown leaves crackling. My car keys jangled. My car lock cracked as it opened. My seat squeaked. The car rattled somewhere. My gears snapped as they worked. My indicators clicked and clacked.

The experience continued when I got home. I heard every word my wife said. Cutlery tinkled. Water was almost deafening. Kitchen and tissue paper crinkled. Unwrapping a KitKat was like scrunching tinfoil. The kettle hissed loudly. The clock on the wall ticked at me. My feet sounded with every step. I heard my hand brushing my sleeve. The knife announced in gravelly voice it was cutting tomato and cucumber. The lettuce chuckled at me as I selected pieces. Peeling an orange reminded me of ripping off Elastoplast. Soft velvet toilet paper crunched and the experiences went on and on......

The aids don't make everything louder - they accentuate the high and low end frequencies I was missing and sounds are all now sharper and clearer. I hear all my typewriter strokes now as I type this - I thought I had a silent keyboard!

I drove to the supermarket and chatted with my wife all the way without asking her to repeat anything!

All these sounds were sounds I had forgotten.

The enormity of the change came when she reached for the TV controls and turned the sound up while I was watching. The sub-titles have not been up since Tuesday. And the last time I spoke on the phone to my sister I could hold the phone at arm's length and still hear her.

I wish I had gone to the Auditory clinic years ago.

I feel so lucky to have my hearing back to what it should be and will be extremely tolerant and considerate to those who cannot regain full hearing.

My main reason for posting this is to help anyone who sees they are in my category but who is still convincing themself "I'm not deaf- it's the other folk at fault'.

Lastly, that Tuesday lunchtime I walked down my back garden path to put some rubbish in the bin and stopped - birds were chirping. I had thought they were all in other gardens, and I felt a tear trying to come through.

If you think you have any of my symptoms, trust me- it's worth getting the hearing tested.

I know, I'm British and our National Health Service helped me - I hope Obama's health plans go through and folk who can't afford the normal hundreds or thousands of dollars for hearing aids can then find help, too.

Thanks for listening, guys and I hope I didn't bore you.
 

Once!

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Funnily enough, I know exactly what you mean. I'm more or less the same. And I keep on putting off the visit to the doctor to have my hearing tested. As you say, it's always someone else's fault....

I suppose it's only reasonable to assume that my hearing will be as rubbish as my eyesight. And the less said about the hair the better.

I may just go and get the old lug 'oles tested.

Thanks!
 

Parametric

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Awww. That was rather touching. I'm so glad your hearing aids are helping, Bufty. :Hug2:
 

King Neptune

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I expect that you have also noticed that some people do mumble instead of speaking clearly.
 

Craig McNeil

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I've worn hearing aids since I was six. My hearing loss is pretty severe though I can hear more than what a lot of people think... It never ceases to amaze me that something that can be relatively easily fixed such as hearing loss is met with such solid ignorance. If your eyesight is going then you get glasses or contacts without giving it much thought. If your hearing is deteriorating it's "No, I'm fine, no problems here, move along." Daft.</rant>

Glad the hearing aids are working out for you Bufty!
 

shadowwalker

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I wish our doctors were as willing to acknowledge this as yours. I've been to doctors several times over the years, explaining that if there's background noise (even the hum of computers), the person has a deep or soft voice, or if they aren't looking right at me as they speak, I can't make out what they're saying. So they do their little test and say my hearing is "within normal range". So, no hearing aid, and people continue to be frustrated with me because I'm "not paying attention".
 

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Bufty, I'm so glad you can hear well now.

Shadowwalker, there's also something called central auditory processing disorder. This causes people to not be able to distinguish speech even though their hearing is in normal range. Or, you might try seeking out a specialist/audiologist to test your hearing loss, if you haven't, as they also will test your speech comprehension and clarity levels. Some people with hearing loss lose clarity, not volume.

I've worn a hearing aid since I was 28 and wouldn't be able to function in the hearing world without it. Now I have some friends who are developing hearing loss and it's painful to me that they won't just go get a hearing aid. Denial just makes a tough problem that much more frustrating.

Also, though, it's important for family and friends to understand how to speak to people with hearing loss. Facing the person when talking, not talking from around corners or other rooms, and trying to isolate your voice from other sounds when talking is a huge help to people with hearing loss.
 
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ClareGreen

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I've been hard of hearing since I was small. There's nothing quite like feeling utterly isolated in a crowd - but if you only have problems when there's background noise or when someone's voice is in a certain register, I'm afraid that seems to be not far enough from normal range for most medical types to care. Also, it definitely used to be the case that if you had hearing aids background noise would still confound you. I'm not sure if that's still the case, but I suspect it may be.

My own hearing loss is very similar to industrial-pattern hearing loss suffered by people who work with heavy diesels. Working at a diesel depot was actually quite cathartic - we were all half-deaf, and because we pitched our voices to where we ourselves could hear them, we could all hear each other.

The ex's voice, unfortunately, fell into the wrong register, and he would get angry when I couldn't hear him, when he was walking down the street and facing away from me with cars going past a couple of feet away.

Deafness is harder for most people to detect than eyesight trouble, though; as with eyesight it deteriorates so slowly that you generally don't notice much of a difference, but unlike eyesight your arms never do get too short to read the paper. People just develop the annoying habit of mumbling, or you wonder why no-one hears you unless you're speaking at a truly unreasonable volume. They must be going deaf...
 
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shakeysix

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Once again Bufty, you are my hero! My hearing also tests out to within the normal range for my age group. And I have suspected for some time that the mumblers around me are really speaking in normal tones. Your post has convinced me that I need to ask my ear doctor some hard questions.

Now, can you explain to me why only Van Morrison, Gordon Lightfoot, Ian Tyson and The Beatles sound like music anymore? --s6
 
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Polenth

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I've worn hearing aids since I was six. My hearing loss is pretty severe though I can hear more than what a lot of people think... It never ceases to amaze me that something that can be relatively easily fixed such as hearing loss is met with such solid ignorance. If your eyesight is going then you get glasses or contacts without giving it much thought. If your hearing is deteriorating it's "No, I'm fine, no problems here, move along." Daft.</rant>

This has issues when it comes to getting help too. With my eyes, I haven't noticed any problem and only went for the test because a family member clearly did need glasses. Turned out I'm slightly short sighted, though not to the point where it'd need correction for any tasks. But if I'd wanted glasses, I could have had them. The view at the place was at that level, people varied in how they reacted (from my situation where I hadn't noticed to people who are really bothered by even a slight loss of vision). So there was no judgement either way. It was my call.

With my ears, I didn't have enough hearing loss to get hearing aids, because it's considered the last resort. It didn't matter that it was clearly impacting my life and my ability to be in crowds and socialise, or that it'd been enough of an issue to make me sign up for the appointments in the first place (it's not as easy as getting eye tests). I'd have to have gone through a whole bunch of other attempts at therapy in order to get to the point of convincing them I really, really, did need hearing aids. Going for help for my ears was the most stressful thing I've ever done, and I couldn't face having to do anything else. So that was that. No hearing aids.

My main hope is I'll one day earn enough money to buy them myself. It's possible to get ones that can be programmed at home for what I need. But it is ridiculous that I have less of an issue with my eyes and could get glasses tomorrow, but my ears... they'll avoid giving me hearing aids at all costs.
 

shadowwalker

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Shadowwalker, there's also something called central auditory processing disorder. This causes people to not be able to distinguish speech even though their hearing is in normal range. Or, you might try seeking out a specialist/audiologist to test your hearing loss, if you haven't, as they also will test your speech comprehension and clarity levels. Some people with hearing loss lose clarity, not volume.

Thanks so much for that info. I will definitely have something to discuss with the next doctor. :D
 

Bolero

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With my ears, I didn't have enough hearing loss to get hearing aids, because it's considered the last resort. It didn't matter that it was clearly impacting my life and my ability to be in crowds and socialise, or that it'd been enough of an issue to make me sign up for the appointments in the first place (it's not as easy as getting eye tests). I'd have to have gone through a whole bunch of other attempts at therapy in order to get to the point of convincing them I really, really, did need hearing aids. Going for help for my ears was the most stressful thing I've ever done, and I couldn't face having to do anything else. So that was that. No hearing aids.

My main hope is I'll one day earn enough money to buy them myself. It's possible to get ones that can be programmed at home for what I need. But it is ridiculous that I have less of an issue with my eyes and could get glasses tomorrow, but my ears... they'll avoid giving me hearing aids at all costs.

OK - I was NHS diagnosed as "upper end loss" some years back. I can not only hear people talking in a quiet room, but also understand what they are saying, if I am reasonably near to them and they face me. Deep pitched noises I have normal hearing anyway. To start with yes, I was offered a therapy session and leaflets and advice - so talk to people at work, tell them you are deaf, sit with your back to a wall etc. None of it worked much, or enough. Everyone at work just plain forgot - some the same day that I went round and did my formal "telling them" and handing out leaflets. So I went back and they gave me one hearing aid. Identical ear problems both sides, but they start you off with one, because not all people cope with hearing aids. Big improvement - sounds all big and loud. A year later, I was given a second hearing aid after I proved I was good with the first one. And that was more than double the sound. Having surround sound made such a difference. I had to ask for appointments, they didn't automatically call me in for the second hearing aid. Once you are on the books as deaf, in the area I was in, you could start making your own appointments directly, not via the GP. May be different now or differ between areas.
I think from first test to getting a hearing aid was about a year - but given the cost of them it is worth it. You also get free batteries on the NHS and that is worth it too.
If you lose a hearing aid you get it replaced. First one is free. If you show a pattern of breaking/losing then they start charging a percentage, more each time.

Big hug to you on the stress. My take is bite the bullet, jump through the hoops, do the therapy. It is half an hour of advice and leaflets - or it was when I did it. It really wasn't that bad. Frustrating that you are not taken at your word, but they are obliged to be economical and try the cheaper option first. Look on it as a tick box. It really makes such a lot of difference to daily life that the sooner you get the aids the better.

I also have a homemade loop system on the TV - the sound feed from the TV goes into an old midi stereo system, and the sound output from the midi system goes into the speakers plus a loop of cooker cable that is laid in a loop under the sofa . That is a big plus to have sound injected directly into your hearing aid. My hearing aids have two microphones each, and with loop setting one is switched to pick up loop feed, the other stays to room sounds. This is for safety - in case you walk away and go out without changing the loop setting back to ambient sound - gives you input of car driving up behind you for example!
You can have problems with TV speaker quality/age and distortion. If you can add better quality speakers that helps even without the loop.
"Official" loop systems - also free on NHS I found to be pants. You had to plug a transmitter bit into your TV sound output, and have a remote with rechargeable battery on a loop hanging round your neck. They broke really easily and the battery would go flat mid-programme.
I have found that loop systems in public places are often not switched on, or the person isn't close enough to the microphone for the loop system to pick up properly.

People talking quickly, or with an unfamiliar accent, or both at once, are still difficult. I just bluntly say "sorry, partially deaf, I can hear you talking but not make out what you are saying, please can you slow down" I even repeat sentences back at them to make sure I've understood. Worst on phone calls.

Crowds remain difficult. So do open plan offices.
One other small downside is hot weather. Your ears sweat with the plastic plug in them and it can lead to ecsema - but there are outpatient appointments for that too at audiology. And you finish up putting drops of scalp ointment for flaky scalps down your ears which sorts it in a few days.
Wouldn't be without my hearing aids. Much better than the alternative even when you get the wind in the microphone.
 
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Haggis

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What's that, Bufty? Speak up, man. I can't hear you. :D

Maybe it's time for me to check it out again too. It's entirely possible that a pair of earglasses (as a hearing aid-wearing friend of mine calls them) might make a world of difference.
 

jclarkdawe

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My grandmother embraced her hearing aid. She'd turn it off if she didn't want to listen to you (my grandmother had no patience with fools, the hearing aid really improved her ability to tolerate them). Made it through one minister in her church that everybody else hated. She never heard him.

Best of luck,

Jim Clark-Dawe
 

Blinkk

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It's great to hear your story, bufty. My grandmother had an incredibly similar experience with vision. She had a corrective procedure done for her eyes and she was thrilled at re-experiencing the colors, the distance, the close up, etc. I find it fascinating that as our lives are getting longer and longer, there are also procedures to go along with it to help us in these ways.

I'm a musician for a living, so I've always taken great care of my hearing. By the time I'm Clapton's age, I don't want to be deaf! At the same time, it's pretty exciting that we have technology that can do things like restore our hearing or vision.

Thanks for sharing your story. You deserve to hear your keyboard, the wife, and crunching gravel. :) Keep on keepin on.
 

cornflake

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Aw, yay you! Glad you went and got aids (some people go and then don't want to use aids), and shared. That's so cool.

Also glad you live where the aids are free. I know a Deaf woman (many deaf people have some hearing and can use aids to some effect/benefit if they so choose, though it doesn't give them 'normal' hearing) who could get what for her were utterly useless aids with insurance, but to get digital aids that'd touch her loss? Three grand a pair, out of pocket, and they break very easily.

Shadow - try an audiologist? Hearing is their business and they're much, much less likely to dismiss a loss that's affecting you.

Originally posted by Bolero

To start with yes, I was offered a therapy session and leaflets and advice - so talk to people at work, tell them you are deaf, sit with your back to a wall etc. None of it worked much, or enough. Everyone at work just plain forgot - some the same day that I went round and did my formal "telling them" and handing out leaflets.

Someone I've known literally my entire life is deaf in one ear and still has to subtly remind me I'm talking to the deaf ear in a crowd.

I've actually seen a fully deaf person shout at the back of another fully deaf person, trying to get his attention - didn't work, heh. For whatever reason, it seems hard to remember. ;)

Bufty's sound experience reminded me of something the shouter once said, reflecting upon getting aids for the first time in his life, as an adult: 'oh my god, peeing is so loud!'
 

Polenth

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Big hug to you on the stress. My take is bite the bullet, jump through the hoops, do the therapy. It is half an hour of advice and leaflets - or it was when I did it. It really wasn't that bad. Frustrating that you are not taken at your word, but they are obliged to be economical and try the cheaper option first. Look on it as a tick box. It really makes such a lot of difference to daily life that the sooner you get the aids the better.

I have low normal hearing (with some loss in the bass range), so I'm not considered to be deaf. I have tinnitus. It's like trying to hear people talking at normal volume when they're standing next to a pneumatic drill. I need to boost the speech so I can hear it over the drill. I tried it out with sound recording equipment, and it really works. I could follow the conversation so easily. I'd never been able to keep up with a group conversation in a crowded place like that. Also, people with tinnitus do get hearing aid prescriptions in some places, so it's not an idea I'd pulled from the sky.

What actually happened is no one but me had ever heard of this. I told my GP my hearing test results and that the issue was tinnitus, which he wrote down and sent the hospital. At the first exam, they wanted to test my hearing, and were surprised and rather hostile that I wasn't deaf. Then I got a longer appointment, where I discovered tinnitus severity is measured by how depressed/suicidal you feel, not how loud the sound is or how much it interferes with hearing. So I have mild tinnitus on that basis, as I don't want to kill myself when I'm in a quiet room. I wish I was making that up.

They didn't offer me therapy in that sense. I was given the link to an expensive piece of software, which is designed to teach people to focus on speech over background sound. This was suggested because I made the mistake of telling them I was a writer, so they assumed my hearing problems were caused by spending too much time alone (I did bring up school and previous work, but it was too late... the idea was planted). There was no follow-up planned. Just I should buy the software, and maybe I could call sometime (because I do so well on phones, with the whole tinnitus-making-it-hard-to-hear thing). There was no suggestion that I could get referred to a tinnitus specialist, even if I did try the software.

The only mildly funny side is when asked how long I'd had tinnitus, I said, "From birth." And the person said, "Oh, you probably know more about it than I do!"
 

Bufty

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Ah, blacbird, the bagpipes and all that hootin' and whoopin'. :snoopy:

Just mentioning - I told my doctor I didn't want an initial 'consultancy' to discuss my hearing and whether or not I needed a hearing aid. I insisted I wanted a hearing aid and an appointment with an audiologist.

The audiologist talked to me then tested my hearing, showed me the obtained frequency charts, said what hearing aid she suggested, and told me my next appointment would be to have the aids fitted and programmed.

The aids are made by the Danish firm Oticon and the lady who fitted them said they were the newest version available. The main part of the aid containing the battery and technology and concealed behind the ear is only the size of a cashew nut!

I was quoted over £1,000 and £2,000 per ear from Specsavers and Boots before deciding to try the NHS, which I'm so glad I did. I felt the NHS staff were genuinely helping me whereas I couldn't get rid of the feeling (rightly or wrongly) the others were trying to sell me the aids with the most bells and whistles and commission.
 
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Bufty

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I'm surprised at your experience here, Polenth - presumably through the NHS.

I thought most folk knew what tinnitus was, whether they were medically trained or not. It certainly seems like a gaping hole in the professional knowledge of whoever was treating you.

I have low normal hearing (with some loss in the bass range), so I'm not considered to be deaf. I have tinnitus. It's like trying to hear people talking at normal volume when they're standing next to a pneumatic drill. I need to boost the speech so I can hear it over the drill. I tried it out with sound recording equipment, and it really works. I could follow the conversation so easily. I'd never been able to keep up with a group conversation in a crowded place like that. Also, people with tinnitus do get hearing aid prescriptions in some places, so it's not an idea I'd pulled from the sky.

What actually happened is no one but me had ever heard of this. ...
 
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Bolero

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I have low normal hearing (with some loss in the bass range), so I'm not considered to be deaf. I have tinnitus. It's like trying to hear people talking at normal volume when they're standing next to a pneumatic drill. I need to boost the speech so I can hear it over the drill. I tried it out with sound recording equipment, and it really works. I could follow the conversation so easily. I'd never been able to keep up with a group conversation in a crowded place like that. Also, people with tinnitus do get hearing aid prescriptions in some places, so it's not an idea I'd pulled from the sky.

What actually happened is no one but me had ever heard of this. I told my GP my hearing test results and that the issue was tinnitus, which he wrote down and sent the hospital. At the first exam, they wanted to test my hearing, and were surprised and rather hostile that I wasn't deaf. Then I got a longer appointment, where I discovered tinnitus severity is measured by how depressed/suicidal you feel, not how loud the sound is or how much it interferes with hearing. So I have mild tinnitus on that basis, as I don't want to kill myself when I'm in a quiet room. I wish I was making that up.

They didn't offer me therapy in that sense. I was given the link to an expensive piece of software, which is designed to teach people to focus on speech over background sound. This was suggested because I made the mistake of telling them I was a writer, so they assumed my hearing problems were caused by spending too much time alone (I did bring up school and previous work, but it was too late... the idea was planted). There was no follow-up planned. Just I should buy the software, and maybe I could call sometime (because I do so well on phones, with the whole tinnitus-making-it-hard-to-hear thing). There was no suggestion that I could get referred to a tinnitus specialist, even if I did try the software.

The only mildly funny side is when asked how long I'd had tinnitus, I said, "From birth." And the person said, "Oh, you probably know more about it than I do!"


Aargh. So yes, totally different from what I have. Kicks self for making assumptions. :(
Trying to think of something to suggest to help.
Yes, I have too experienced the NHS getting themselves totally convinced that something is true when it isn't. I have then "won" simply because after a year I was seeing someone new and/or we moved house, were in a new NHS area and again it was someone new and rather than reading notes they asked me to talk through what was happening. Also priorities/budgets/what they are allowed to prescribe does change with time.
With anything physiotherapy/osteopathy related I have long since gone private - as in pay for the appointments but that is usually £35 per session for say 6 sessions, not thousands. Both with the physio, and laterally the osteopath, if I need something from the NHS, they write a letter, I take it to my GP and the GP books whatever it is. So a letter on an official heading from a qualified practitioner saying "give this person xxxx". Worked for me.

Continuing brainstorming - I've never had any dealings with the Royal Society for the Deaf but maybe if you asked them they could write a letter for you? Um, a letter from the people who did the software?
You kind of need the perfect person or persons, with qualifications, to point out the total muppetness of what is going on.
My osteopath and I did have a conversation the other day on the wider nature of letters he writes. He said that the NHS daren't ignore such letters, as they would leave themselves open to legal action if it all went belly up.


Incidentally, and as a tiny note of caution, I don't know how abruptly they behaved, but a lot of years back a friend of someone I once worked with got banned from being on a GPs list due to their insistence that something was wrong with his wife, wouldn't take "its all in her mind" for an answer. Later it was discovered that something very rare was indeed wrong. Don't know if the GP apologised.
 
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Craig McNeil

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The RNID is now called Action on Hearing Loss, with a stroke through the Loss. Just in case you can't find them.

Things may have moved on since I last looked into it, but the 'cure' for tinnitus used to be getting a hearing aid which boosted the sounds you needed to hear over that caused by the tinnitus. From what I remember, it didn't need to be a powerful hearing aid either but it'll depend on how good/ bad you hearing actually is.
 

Bufty

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I guess when I go back to the clinic in about two or three months I'll be asked if there's anything I want to mention and the internal digitalised computer settings may be slightly tweaked but at present I don't fiddle with anything.

Not that there's anything to fiddle with apart from volume, which I don't touch at all.

I pop them in in the morning and leave them alone till I take them out at night.

I haven't been in a restaurant scenario yet but being in a shop was excellent. No problems.

I do realise everyone is different but hopefully my experience may help others who perhaps recognise my symptoms in themselves but have hesitated to do anything about it.
 

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Bufty, it's great that you aids are so close to perfect your first time out. Some people lose patience with going through the adjustments in sound levels, but it's a normal part of the fitting and adjustment process. One thing that makes hearing loss different from vision loss is that a lot of hearing happens in the brain. Two people with the same audiograms can require very different settings on their aids.

Whenever I get a new hearing aid, I visit the audiologist every 1-2 weeks for about three months before I'm satisfied and can hear well in all scenarios. It's just the nature of my hearing loss. Then I don't see the audi again for a few years unless there's a problem, and aids these days are pretty reliable.

Polenth, you're right about tinnitus and hearing aids. I know some manufacturers, Widex and Phonak if not others, too, have tinnitus programs, which run some sort of soft sounds in the background. I've heard it helps some people a lot.