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For those who don't know the story, my youngest son (age 7 weeks), Paul, has Downs Syndrome and a heart condition that will require heart surgery. It is slated for November 20th.
In the meantime, he was checked into the hospital for signs of Chronic Cardiac Failure --because the condition is starting to tax him. He cannot gain weight --they started a feeding tube today.
I have been at the Hospital since October 30th. It looks like we will be camping out here until the surgery and then for the ten to 14 days post-op recovery.
I am now officially starting my pity party because I am really feeling overwhelmed by this. I'm homesick for my whole family for more than the five to ten minutes I get with them when they come to visit. I miss all my babies. I miss sleeping in a real bed and eating food that doesn't come from a cafeteria or a vending machine.
And now I read this and feel annoyed with myself.
In the meantime, he was checked into the hospital for signs of Chronic Cardiac Failure --because the condition is starting to tax him. He cannot gain weight --they started a feeding tube today.
I have been at the Hospital since October 30th. It looks like we will be camping out here until the surgery and then for the ten to 14 days post-op recovery.
I am now officially starting my pity party because I am really feeling overwhelmed by this. I'm homesick for my whole family for more than the five to ten minutes I get with them when they come to visit. I miss all my babies. I miss sleeping in a real bed and eating food that doesn't come from a cafeteria or a vending machine.
And now I read this and feel annoyed with myself.