Congrats on the brunch, and ooh pretty flowers!
We all knew it was going to happen, just a matter of when. His tumor is one of one of the hardest to treat. It's chemo resistant and radiation only has a 40% chance of working. They couldnt get all of it our in his brain so that drops his chances to 30%.
He is quite excited for radiation. He likes playing with the nurses before he goes in for his General anasthetic each time. He just doesnt like any of the rest: surgery, being hooked up to IV for days at a time (thats the bit he hates the most), yet more doctors appointments.
We are 6 weeks away from bringing Charm home. I've arranged for a friend of mine to look after her if we need him to, but to bo honest I'm not 100% sure if getting her is the best decision at the moment. Even though I know she is going to bring my family so much joy and love and laughter and this really is the time that we need it most at the moment, but really I am going to have a child freshly out of surgery, he is going to have massive burns on his back from radiation, we;re going to be going back nad forth for day trips to the hospital even more than we already are. Is it fair on Charm?
I had a dream the other night that Dashy came back to life, it was the best dream. But when I woke to find my house empty of him I almost had yet another melt down.
All of this just feels like the icing on the cake. I just really want to trade lives with some one else at this point.
It's been 2 years since my son was first diagnosed and I'm still asking myself 'why us?' it's not like we're bad people, what did we do to deserve all of this?
We all knew it was going to happen, just a matter of when. His tumor is one of one of the hardest to treat. It's chemo resistant and radiation only has a 40% chance of working. They couldnt get all of it our in his brain so that drops his chances to 30%.
He is quite excited for radiation. He likes playing with the nurses before he goes in for his General anasthetic each time. He just doesnt like any of the rest: surgery, being hooked up to IV for days at a time (thats the bit he hates the most), yet more doctors appointments.
We are 6 weeks away from bringing Charm home. I've arranged for a friend of mine to look after her if we need him to, but to bo honest I'm not 100% sure if getting her is the best decision at the moment. Even though I know she is going to bring my family so much joy and love and laughter and this really is the time that we need it most at the moment, but really I am going to have a child freshly out of surgery, he is going to have massive burns on his back from radiation, we;re going to be going back nad forth for day trips to the hospital even more than we already are. Is it fair on Charm?
I had a dream the other night that Dashy came back to life, it was the best dream. But when I woke to find my house empty of him I almost had yet another melt down.
All of this just feels like the icing on the cake. I just really want to trade lives with some one else at this point.
It's been 2 years since my son was first diagnosed and I'm still asking myself 'why us?' it's not like we're bad people, what did we do to deserve all of this?